My wife, faith-filler and pillar of strength!

My wife, faith-filler and pillar of strength!
Lee-Anne

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Thursday, July 22, 2010

Motivation...

I sent this to the ladies at the Transplant Clinic as I felt things were moving a little slow:

To All the Roleplayers

I started my second round of dialysis when my first transplant failed in August 2009. I never thought I would need a transplant, let alone two. I am being treated for depression and anxiety. In this last year I have had two potential transplants called off, endured an unnecessary nephrectomy, which has lead to all sorts of complications such as seizures and electrolyte imbalances; not to mention water retention and six weeks of unnecessary haemodialysis. All the while, I have a full time job to keep, complete with my CAPD, and employers to appease. On the home front I have a wife who is frazzled to the core but is a shining example of commitment to marriage vows. She will go to hell and back for me, if only there is an end in sight. I have two little boys who have not played with their Dad for a year now because he has no energy. They have also seen me having seizures and ask if I am going to die. My little girl is four, she needs her Dad…I want to throw her in the air while she is still small enough.

These few sentences hardly do justice to what has been a terribly disappointing year, but my aim here is not to complain but to appeal. I know there are people with bigger problems than mine, I appreciate that fact. I would however like to appeal not for myself, but for those I care about most that this process be speeded up please. Maybe because of everything that has happened we are over-sensitive but it all seems to be taking place so slowly. Days, weeks and months tick by and I seem never closer to a transplant.

I am fortunate enough to have a very willing donor. However, willing donors also have anxieties, questions and lives; and I need to grant mine some respect by not dilly-dallying with his mind. I need a champion to drive this process please guys!

1 comment:

  1. Hi!

    It seems you're going through pretty much the same as what my wife Samix is. She's been in renal failure for about 7 years now due to a paralyzed bladder and various multi drug resistant infections in her kidneys. Her situation is a bit long to write in a comment but basically she's had few ops to enlarge her bladder with bits of her colon and then they removed that. She had a stoma bag for a while and then they removed it when they removed her kidneys and spleen. Recently they removed her gall bladder and fixed a whole bunch of stomach ulcers. She also suffers from seizures and migraines related to dialysis. Currently we're also searching for living donors for Sam because her nephrologist reckons she won't last long enough to wait on the donor list for a cadaver kidney. If you're keen perhaps you and Sam would like to swap details? I think its easier to talk to someone when you know they're going through the same thing as you are?

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